I hope this email finds you well! I am glad to report my bloodwork continues to be clear, no signs of Thyroglobulin or antibodies – my endocrinologist even told me I could wait another year for my scan! This is a first! I found out the same time as I was on the way to my sister-in-law’s wedding which I helped coordinate so the good news was lost for awhile in the flurry of events and family visits.
My husband and I are trying daily to follow a better routine of eating healthier home-made meals and enjoying time at the gym regularly, it started before New Years so not really a resolution, but more a lifestyle change we are easing into. Trying to maximize use of the fleeting hours in a day can be challenging, I can’t imagine what it will be like one day with children…
One of my “resolutions” for the year is to take care of myself better though- which means moving on to an endocrinologist that better meets my needs, visiting a fertility specialist, going to the dentist for my TMJ pain and care, and taking better care of my back. One by one these are lining up and I’m addressing them- its not a job for the weary but your health is something you have to care for all your life so I need to remind myself I am worth it.
I hope you all know the same :)
Well, after 4 scans yesterday which was over 2 hours on the tables with machines pressing down and spinning around me, I sat down for what wound up being a concise 12 minute conversation with one of the endocrinologists at Washington Health Center. The verdict was good but of course a bit mixed… There is a bit of light-up on my scans and it’s in the same place that lit up the last two times- just a bit on my Adams apple area and a slightly larger blot on my neck in the middle.
Of course I was very hypothyroid and the measurements of Thyroglobulin (TG) aka the cancer/thyroid tissue marker is still undetectable making it good news. But with these two stubborn spots the overwhelming certainty is more close watching, no further time between scans – possibly an MRI and ultrasound to be sure but nothing urgent. An interesting thing I learned from the appt is the doctor stating that my % of uptake (how much iodine got absorbed and shows on the scan) was last time 0.6% and now is 01.6% but that variation is likely the difference between a scan using Thyrogen and one done with thyroid hormone withdrawal, apparently they have found that the absorbed iodine “washes out” sooner when using Thyrogen… Interesting to know.
Now I can try to put this all out of my mind for now and focus on my honeymoon coming up :) but I also found out one of my cousins was just diagnosed with Stage 2 breast cancer… I f***ing hate cancers guts.
threw a punch at your cancer.
Here I go, one foot in front of the other down… First I was switched to Cytomel which was a pain in the neck to adjust to 2 pills daily from one, and that I have stopped for 4 days now, 15 more to go I hope though must call my endo to see if between the scan date and the appointment date I can start back on Synthroid.
The low- iodine diet surprisingly not as much concern since I have done it before (if not in a while) and know the routine unlike the withdrawal. I have noticed headaches- quite persistently through my day- unusually nagging and in the back of my head and temples, need to pack Excedrin daily. Anyone else experienced them when hypo? I did a bit of research and they are mentioned though as a side-note but of course we all react differently.
My scan is on the 15th- pill on the 12th- sucks to not be able to snuggle with my new husband but it’s just temporary I tell myself. Of course in postponing the test I do realize that it was a better plan for handling pre-wedding stress however it does present an entirely different dilemma when you are trying to be (and people expect) a happy newlywed and they might catch me in a depressed mood as I’ve noticed comes and goes since stopping the medication. I’m sure it’s not all that but much more- going through this as 2 and not 1 it’s letting myself be weak and it is freeing to a point and I know that I thank God everyday for the amazing man he sent in my husband!
Ok, enough gushing- I will post some wedding pictures on here for you all and just hope that this test will show nothing that will ruin my ability to relax as we plan our honeymoon for Puerto Rico over New Years…